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jumping through the hoops
One more thing.... 
11th-Jan-2009 07:19 am
Here is an email i sent out to friends and family. For those of you I missed here ya go!


I wanted to send a quick update about our visit to Children's Hospital of Philadelphia. We will hopefully have a post up on Ruby's website later this morning going into more detail. Ruby's website is RubyHope.com or RubyStarling.com (NO WWW's for some reason). Chris is working out the kinks. He's trying to set up an email feature that sends out an email whenever we post. This is mostly for family members who don't have the need for Google Reader :) Keep in mind it's still under construction, but we are going to start posting regularly.

We got the best news we possibly could in our situation. Dr. HH, whom we both loved, said she had a 90% chance of survival. She does not have a severe case of CDH. Keep in mind this is a 90% chance at Children's Hospital of Philedelphia. We aren't home free, but things are looking as good as they can. Dr. HH also said our chances of needing ECMO (again we'll explain more on the website) are pretty low. Her heart is good, no defects. Which is another good thing. We still have plenty of hurdles to get over and no one can be sure how good her lungs are until she is born. We are both very happy about the prognosis. This is the best news we've had in weeks!

We have an appointment with Dr. O on Monday at Texas Children's Hospital in Houston. After we hear what he has to say, we get to choose which program would be best for us. Right now this is our biggest stressor. We want to make sure we choose the perfect place for us. It's a tough decision, but I am hopeful that we will make the right one.

Please check the website for updates! I promise we will start posting things!

Thank you all for your love and support,

I still plan on posting here.  Ruby's site will be family safe.  I'll have a link here to her site but we are not going to link my blog from her site.  Since Aunts and Uncles will be reading Ruby's page.  While I am pretty open about things, I don't think Chris's uncle needs to know about my cervical mucus or how many miles I ran.  Plus Ruby deserves her own page :)

Please start checking RubyHope.com!
11th-Jan-2009 03:30 pm (UTC) - re: CHOP
I'm so glad you found some answers at CHOP. We also found them to be absurdly confident, compassionate, understanding, and organized. I'll be checking back for your final decision. Wishing you all the very best.
11th-Jan-2009 04:10 pm (UTC)
So glad that you got some reassuring information from CHOP. I'm sure it's all so overwhelming right now trying to decide what's best. I hope that you are able to make a decision that you and Chris are both comfortable with. Sending many positive thoughts your way.
11th-Jan-2009 11:33 pm (UTC)
I'm so glad you heard such good news! I haven't read your other posts about the trip, but this one made me smile.

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